30 April 2010

Which Political Party Will Look After Carers?

I was intent on maintaining an election-free zone here, but can't help noticing the ambivalent position of carers in this political race. The six million informal carers in Britain looking after family or friends who are frail, ill or disabled save the NHS and social services an estimated £87 billion, very often putting their own health and well-being in jeopardy through the demands of their caring responsibilities.

Gradually, in the last few years, the importance of carers has begun to be recognised, with social services obliged to make an assessment of the carer's needs, as well as the person they are caring for, and Carer's Allowance paying the royal sum of £53.90 a week to full-time carers, albeit at the cost of reducing other benefits and entitlements. With much fanfare, extra money was made available by the government to pay for respite breaks for carers - yet just last month, it was revealed that these funds were simply distributed to NHS trusts without ring-fencing, and perhaps predictably, most seems to have been spent on other things.

Carers have occasionally appeared in sharp focus in the election campaign, perhaps the most prominent example being Jonathan Bartley, the father of a young disabled boy, who confronted David Cameron with the painful and prolonged struggle his family had gone through to have their son's educational needs met as they wished - the underlying point being a mismatch between the political rhetoric and experience on the ground, as it were. Whilst much has been said about providing education for disabled children in the mainstream, rather than segregating them in special schools, the resources needed to achieve this (rather like the funding for those desirable respite breaks for carers) haven't materialised, leaving a situation where families feel cheated of what they have been told they can expect from the system, and only those with the most determination and resilience stand a chance of winning through.

I can just imagine how up for a battle with local bureaucracy you feel on top of being a full-time carer.

None of the main parties are saying much about carers: they all need them to carry on doing the awesome job they do, saving the vast amounts of money that would otherwise have to be found to replace them, I just wonder how their fragile support system will stand up to the cost savings that have to be made?

12 comments:

  1. Hi Frances,

    You may be interested in this response we did regarding the White Paper for social care..
    http://carerwatch.com/news/

    The Leader debates did not cover any of these issues in detail and the Health debates seem to develop in to a 'free for all' at times.

    So important an issue, and yet consensus seems to be getting further out of reach.

    Thank you
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  2. I'm really concerned about where the apparently inevitable public sector expenditure cuts will fall. My greatest anxiety is about the Conservatives as IFS has indicated that their unspeciied cuts required are considerably higher than the other parties - and furthermore that part of this is due to tax cuts they wish to make. I don't feel this is the time for tax cuts and that the planned national insurance increase is better than the alternatives of cuts.

    The one tax concession I would like to see is some facility for the personal tax allowance of a cared for person to be held against taxable income of a carer.
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  3. Hi,
    I think carers get a raw deal, it does not matter which party is in power, I am a carer for my wife, I am 78 in August, because I am in receipt of a pension, the government says once a carer is over the age of 65, and receives a pension, which I point out was paid into during our working life, they do not get any payment for care, in my opinion if one is a pensioner or disabled they are surplus to requirements.
    John Appleton
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  4. Human beings are born, they live and they die like all members of the animal kingdom. For most of us we will be educated well or badly and will have to sell our labour for reward. Presently that gives us all to invest for disability, pensions, health and care (there is no way to separate health and care in old age). So the government must accept this and have a scheme, either state or private or both, whereby we all contribute for these things and they are matched from government funds. It will be for individuals to decide which scheme they wish to join and the risks that they have to take between public and private funds. Really, what is the problem - why do we try and separate these things.Gerald Davies, age 86 of Winchester,
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  5. Yes, watching the debate last night I wasn't convinced either with anything much of what was being said. A lot of words with little substance. However, when is comes to domiciliary carers, I think that the Lib Dem's idea of increasing the income tax threshold level to £10,000 will help many live in carers who unfortunately work hard but receive low salaries.
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  6. I am not familiar with the specific detail of all the support available, but overall there seems to be quite a lot. My beef is more about the DWP than specific political issues. The DWP appears to be a huge and cumbersome organisation that is there to avoid paying out funds. One hears so much about the fraudsters that it is frustrating when genuine cases need to be heard and have to wait such a long time to be heard.

    Personally I have waited, spent time, money and effort waiting for a decision that could have been made in days rather than months. For me this is the issue that the politicians should be addressing then they can review the issue of availability.
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  7. I have been a 'part time' carer for a year or two and full time carer since January. My wife gets Attendance Allowance at the higher rate. I then got the pack to apply for Carer's Allownce. I read that only to find that, since I get old age pension, I would not get carer's allowance or, if I did, it would be knocked off my pension. Ah well! That's life, I suppose.

    My family rally round but they live well over 100 miles away and what they can do is inevitably limited.

    This is not to complain my lot [much better than many] but just to add one more statistic.
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  8. Thank you to everybody who has taken the time to comment here: John Appleton has made a point that has also been brought up by several other people - most of whom contacted me privately - the unfairness that Carer's Allowance is either not available for people over retirement age, or deducted from their pension. This feeds into a sense that the contribution made by older people is not valued in the same way as that of their younger counterparts.

    Brian's observation about the DWP grinding exceedingly slowly in processing claims is also well-made: ironic that the public sector has had such huge investment over the past decade, yet doesn't seem to be any more efficient...
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  9. Hi Francis,
    Carers are forgotten and left to struggle.
    You may be interested to read what some carers did recently, and this was despite their 24 hour caring role.
    In my opinion they are champions and deserve more help, but will they get it after the election?
    http://chill4us.com/index.php?topic=27157.0
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  10. Hi Frances, thank you for your email.

    These links may interest you. First one from ourselves regarding the silence from 3 main Leaders in their debates regarding the issues surrounding Social Care and carers
    http://bit.ly/CarerWatch

    Also http://bit.ly/PeterBeresford ,Peter Beresford is professor of social work at Brunel University and chair of service user organisation Shaping Our Lives

    And... http://bit.ly/DanParton , Dan is a senior journalist that covers Social Care

    Last but not least... http://bit.ly/MalcolmPayne
    , Social care and social work are important in end-of-life care.

    Future funding for care cannot and must not be looked at in isolation away from carers.
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  11. I vote the Conservatives would be the one. I think they would be more likely to look into what is necessary for the disabled.

    I would like to tell you there was a company started up where I live and they have employed young girls who have had no experience. The likes of me who is in constant pain require a carer to be trained to help me. There is nobody to look into the likes of this company. If the carers had some type of training they would be in a position to get money from the government for a patient that was not in a position to pay. I have experienced the attitude and lack of training of a lot of young ladies.

    The company I am thinking of have young girls putting old people to bed and do not respect their dignity. What you need is a voice to tell the government that these are imporant and necessary for the old and disabled. The council pay the Company for carers for a lot of their elderly and disabled, but I don't think they check that the carers are qualified. I have heard of cases where the carer has hit an elderly person because she was wet. I think you need somebody from the Council to represent the carers. They have experience and could make the government understand their needs.
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  12. Interesting comment - when I first wrote the blog, I was thinking mainly about family carers, but it is clear that the needs of people employed as carers, and those they care for, are also vulnerable to the need for cuts in spending. Already low-paid and often not well trained, care staff definitely need more support, not less!
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