21 June 2010

End of Life Choices

I have written here before about assisted suicide and choices around the end of life Assisted Dying – A Duty too Far and Better Dead Than Disabled and it seems that the subject just isn't going to go away until we have a proper debate about it, rather than skirting around the issue and allowing high-handed medics to take unilateral decisions by default.

Ironically, I suspect that many people who might instinctively support a classic British “fudge”, as a practical way of allowing commonsense to prevail in this complicated area, will have been jolted out of that viewpoint by the attitude of retired GP Howard Martin, who seems to have been worryingly sure of his own ability (and right) to assess the quality of an individual's life, and the amount of suffering they might be experiencing. Invoking “Christian compassion” as a justification for his actions adds another controversial ingredient to the toxic brew, given the often-quoted Christian regard for the sanctity of life.

Reactions from those most closely affected by his decisions - the relatives of his patients, for of course the patients themselves are no longer in a position to give their opinion - make the situation no clearer, ranging as they do from describing him as an “angel of mercy” to somebody “lacking in compassion... so arrogant, so cruel”.

It seems, as always, that there are no rules or yardsticks that can be universally applied to judge the quality of a life: what one person perceives as intolerable suffering may not appear so to another. Which brings us back round to an individual's right to decide for themselves when/if their life is no longer endurable, and to be helped to end it if they are not able to achieve this themselves. Like it or not, we are a consumer society and have grown accustomed to choice: in everything from education to health care, insurance to banking, we are encouraged to believe that there are multiple options for us – why should we not feel the same about the way in which we approach the final event of our lives?

One choice that is not as widely available as it should be is good palliative care: perhaps some people who think they should be helped to commit suicide would be less disposed to this solution if they were confident that their final days would be managed in a way that removed pain and respected their dignity. And we must never lose sight of the risk that a right to die might morph into a duty to die, when an individual starts to feel that they are becoming a burden (financial or emotional) for their family or friends. You might be interested to read about a new book that has just been published "End of Life – the Essential Guide to Caring" which looks at both the practical and emotional issues around dying and bereavement.

No easy answers, but I don't think that takes away our responsibility to discuss the options, and try to reach a consensus, rather than muddling along as before, and allowing the Howard Martins to make the decisions for us.

What do you think? You can share your ideas by leaving a comment here, anonymously if you prefer.

6 comments:

  1. Thanks for your thoughtful blog. This is one issue where many non-disabled people still think they know best. Disabled people are organising on the issue as we've got to make our voices heard. Go to http://www.notdeadyetuk.org for more info. and personal stories. There's also a link to join the Resistance Campaign. All the best, Roger
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  2. Just as I believe we have a right and responsibility for our lives we also have a right to say how it ends, after all it's nobody's decision anyway. no-one is qualified to decide right?
     
    So if the manner and circumstances of our life end is laid out and everyone is made aware in a personal charter, say drawn up when we are of age then the criteria of our decision can be adhered to wherever and whenever possible (up a mountain would be difficult, [unless you're a mountaineer] but you know what I mean). Maybe link it in with our donor card details so all those in a postion are informed including relatives etc.
     
    That way doctors cannot take the decision and will have to carry our wishes according to our charter of life/death.
     
    Just an idea now that assisted suicides can be arranged without any recourse or problem for relatives, it seems to be the next logical step in an illogical world.

    And if you want to trust to your own God and let fate take it's course then that could be a choice as well. It isn't about dictating the way out just having some idea what the person would like.
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  3. Whenever i see the post like your's i feel that there are still helpful people who share information for the help of others, it must be helpful for other's. thanx and good job.

    Finance Dissertations Help
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  4. I don't know what I think. I used to be pro choice. Now I worry about the choice.
    My mum had Motor Neurone Disease; Dad & I were called to the Hospice where she was 'recovering' from a PEG op. They asked if we wanted her to die in the hospice or at home. We said home. I believe she would have died there within a couple of weeks but at home she lived on for 3 months. That was not good but dying through lack of love and care even if more quickly is surely worse. I would have tried to hasten her end at home if she wanted it but she didn't, she clung to life. It was horrible. Now my dad has a Parkinsonism disease and I care fro him at home 24/7. He hasn't a great quality of life but it varies from awful to not too bad. When he has a lung infection I am reminded that Pneumonia is the old man's friend. But I can't say "No, don't give antibiotics." I can't. The doc said he would have to agree. I can't have him asked that question. It implies that I want him to die. When he has been really ill, I have thought he'd be better just dying and if I could just do it for him I would... I say that but I couldn't.
    I do believe that if he was in hospital or a Nursing Home he would die within 2 months. After 1 week in a home or hospital he goes into corpse mode. I can't let my dad die like that.
    I don't know the answer.
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  5. i can understand all sides off this who has the right why when and so on.
    i am disabled and in pain and i feel it is my right that when i am so ill that i can not move do any any thing for my self why cant i take a tablet and go to sleep or ask my love ones to help with out them been taken to court ect.
    it is up tp me and me alone and no one else i have seen suffering and to the person who brought her loved one home and she died with love. we did the same and we was all there when my nan died and it was peace full to know that we did all we could for her. but i do think off the suffering she had. this is why i wish they could let us go when we know time is here for us to stop us from suffering this is my view and i do not get angry with people who think differant so why do people get mad with my view
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  6. Thank you for these thoughtful and moving contributions to the debate.

    They provide more evidence (if it was needed) of just how difficult a subject this is, with no straightforward answers.

    Gary's plea for tolerance of different views is well-made.
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